Whew, what a 24 hours!
Declan had lots of blood work yesterday and a couple of things were uncovered…his hgb (hemoglobin) was low at 6.4 (should be north of 7) and one of the lumens in his central line has an infection. It was later discovered his other lumen also has an infection which was kind of expected based on his condition when we got to the ER.
He received a blood transfusion yesterday morning for the low hgb and since his arrival he has been receiving antibiotics (they add them initially until they rule out infection). Right now he is on 3 different antibiotics. We hope this will clear the infection, if not he will need to have his central line removed until his infection clears and have a new one put in (more surgery). We are praying this doesn’t occur but obviously treating the infection is key.
We’re kind of lucky this happened now while he counts are still high. For those in the know, his ANC is 3279…for those out of the know , ANC is a measurement of the body’s ability to fight infection. The closer the number is to zero the more compromised your immune system is and the more difficult it is for the body to fight infections like this.
Right now, he’s headed in the right direction and seems to be calming down. His heart rate has reduced from a high of 240 (extremely high) to about 175-195 (still high but a huge improvement).
Declan was rather restless yesterday and didn’t sleep too much after being up until 5am in the ER and then on again off again until about 8am. Thankfully, Stan called my Dad and he came in to help me get some much needed zzzzz’s yesterday.
I should also mention a HUGE thanks to Rachel, my Mom, Stan’s sister Beth, his cousin Donna (gee, I hope I’m not leaving anyone out!) who stepped in to take care of Brady and Cole while we were here with Declan in the ER and then while Stan went to pick up Will.
Big brother, Will has been at BRASS Camp, a camp for kids who’s siblings have cancer, this week (his first overnight camp!) and wanted to see Declan.
Sidebar… I was all excited to hear about Will’s camp experience. I’d always wanted to go to overnight camp as a kid and imagined it would be like the movie ‘Little Darlings’ with Kristi McNichol and Tatum O’Neill but I digress. Those of you who know Will, know he can talk the paint off your proverbial walls or he’s a clam. Yesterday, he was a clam. He was very excited to canoe and was able to do that at camp…best part was the capsizing they did on the last day. He also took part in learning how to cook outdoors over an open flame campfire…cool stuff and he learned to make s’mores the REAL way, not over some gas grill in the driveway. That’s it…and that was after much probing by Mommy. The food? Good. The friends? Nice. Sleeping in a big cabin full of people? Ok. (I did get an extra “It was hot.” after that question.) Sheesh…these are the times when I wonder what it would be like to have a girl.
Will, came in yesterday to see Declan and as is always the case when Will is around, he was able to coax a couple of smiles out of Declan…and there weren’t many yesterday. He read to him out of his favorite book too.
Declan was also a bit cheery in the evening during shift change when a bunch of his favorite nurses stopped by to say hi and get some Declan smiles. (Boy, sometimes it’s hard being Mommy or Daddy…we get the whines and cries on the “bad” days but it’s awesome to know the smiles aren’t too far from the surface.)
I mean really, look at this…it’s like the King holding court!
He finally settled down last night at about 11 and slept until 4am. After a very full diaper change at 4 (he’s getting incredible amounts of fluids to help with the infection), we played for a bit and then I rocked him. Declan slept on and off until 8:30 when Grandad and MeMaw came in with much needed coffee for me. MeMaw held Declan for a big chunk of the morning and we realized it was the first time in months that she’s been able to hold him…a real treat for them both. As you can see, Declan was pretty comfy in MeMaw’s arms.
So what’s next? We will be here for at least the next few days to watch the infection and get him more stable. To be discharged, he will need to be blood culture negative, temp free for 48 hours and his counts (ANC) will need to be above at least 500 for us to leave. The last one sounds easy enough with an ANC of 3279 now but it’s amazing how quickly the ANC can drop post chemo and how slow it moves back up. So we’re hopeful the stars will align and we’ll be out by mid-week.
See? Busy 24 hours…whew! I need to go now…Brady’s on the way in and he’ll want my full attention. Have a nice Sunday everyone.