Hello friends! We havent had a chance to figure out the Internet yet so posting from my iPhone but wanted to let you all know we arrived safe and sound. NetJets and Signature Air treated us like royalty and our flight was wonderful. Brady was a hoot! We settled in with no issues and Declan had a great night! I’ll post more detail once I can get a few minutes. Thank you for all the prayers!!
I know Sherri and Stan will probably blog when they get to Houston but wanted to let folks know they took off safely. I feel there was a special message in the timing of the take off — as they took off, my alarm went off to remind me to pray for Declan at noon! We feel blessed that so many people are praying for Declan at noon each day — please continue, its part of the miracle! I pray that the flight goes well, that the Marriott in Houston has accommodations that work for this big family and that MD Anderson provides more positive steps in this miracle for Declan. We continue to thank you for your support!
Declan was all smiles at the airport today and happy to see his brothers!
Brady was pensively considering the big trip while brother Cole was taking it in stride!
Declan had a good day yesterday, lots of smiles and talking to Grandpa was fun too!
…trying to get ready for Houston, Declan is having a great day!! Thought you’d all enjoy a quick pic to tie you over until we get settled in Houston.
We leave tomorrow morning and are anxious / excited / a little scared but sure we are embarking on a trip of a lifetime.
Trip of a lifetime on two fronts…
…for us to spend an entire month away from home and with our boys!
…and for Declan, truly a trip of lifetime…for his lifetime; his very long, happy and healthy lifetime!
Watch out Houston, here come the Carmicals!
For every sad story, there is a happy story.
I learned this morning Tanner, a young man who’s story we are following, received some wonderful news yesterday. His last set of scans came back clean.
Cancer took the life of an adorable young lady today. Someone very special. Even though she and I never officially spoke, the actions of those who cared for her spoke volumes about her.
The gentleness of her Dad permeated his smile as we exchanged our pleasantries in the hallways.
My heart is breaking for her family. I’ve prayed hard for understanding…for her and for my child…well, any child. I will continue to pray.
I asked my friend how she does this job. And while she said it was hard, she also said it was the moments where she could provide comfort or a smile (or a big full belly laugh from my son) in which she drew strength and knew her actions made a difference for that person. I saw her and two other nurses sneaking into this young lady’s room the other night with treats for her…it was very touching to watch because it was real. They care and it shows.
So I’m at a loss for words. Except to say…
God bless you, sweet angel. May you rest in peace.
Stan and I have been sick and not able to visit Declan, and it’s been tough not seeing him regularly. So today I’m well and I got to see Declan! Brady and I went to the hospital this morning. Brady brought Declan a bear and Declan loved it!
Brady was thrilled to have some fun time with Mommy while I got to play with Declan. He was mostly smiling today, but the episodic bouts of discomfort are still coming and it’s tough to watch. Declan also got sick once while I was there and that’s tough to watch as well, but somehow he always bounces right back and starts cooing and smiling again.
Mom gave me a tutorial on how to manuver the IV pole and the stroller and I took him on a stroller ride through the halls and even went out in the courtyard for a little while when Mommy and Brady were in the playroom (Brady loves that playroom – I gotta check it out for some hints for Nana’s house). When we got back to the room I got to hold and rock Declan before the occupational therapist came in to put him to work with his exercises. He is doing so much better at holding up his head and reaching for toys. It’s good to see him making progress in spite of everything.
Another wonderful mom came in with her little boy to talk about the hospital in Houston, she had so many wonderful things to say about the people, the facility and the atmosphere of hope there. It felt so good to hear these positive messages! Thanks Susie and John for the visit today. So, today was a good day — also Declan and Cole’s 9month birthday, hard to believe! It’s also Aunt Kay’s birthday, Happy Birthday Aunt Kay!
Declan is still a very sick little boy and I ask that you all continue to pray with us. I know that through prayer all things are possible – (James 5:14) Is anyone among you sick? Let him call for the elders of the church, and let them pray over him, anointing him with oil in the name of the Lord. And the prayer of faith will save the sick, and the Lord will raise him up. And if he has committed sins, he will be forgiven. Confess your trespasses to one another, and pray for one another, that you may be healed. The effective, fervent prayer of a righteous man avails much. I believe that prayer will bring the miracle and I thank all of you for your continued prayers and support.
My babies turned 9 months old today. It’s so hard to believe they’re 9 months old. They are both amazing, of course I am biased but what mother isn’t?! We surely had a different vision of what this time would mean with twins…two babies starting to roll, crawl and generally move around. And while our milestone for both Cole and Declan have changed, we are still in awe of them each day.
Cole for hitting the milestones you anticipate…with any of your children, it really isn’t any less awe inspiring even though you know its coming. They are learning the world around them. Truly a marvel.
For Declan, sure…it’s not exactly what we’d envisioned but he’s making strides. He is gaining back what the time in the hospital has taken away from him. He’s doing it and it is similarly awe inspiring.
Each success is punctuated with a smile that would like up a town. Each different and perfect. We are blessed to have these two amazingly sweet babies in our lives.
Happy 9 Months!
This weekend, my Dad & Helen kept saying they were going to come to the hospital on Sunday at 5pm I could leave (insert Hollywood horror music here) and go get dinner with Stan. I was very reluctant because Stan and I have tried to make sure one of us is with Declan at all times. Its not that we don’t trust anyone but his has been known to change his status from good to not so good rather quickly. But my Dad was relentless and both my Mom and Stan’s Mom agreed to help with the boys at home. So last night, Stan and I went on a date. (insert giddy school girl laughter here).
Ok, so 5 on a Sunday is hardly “date night” but it was the first time Stan and I have been out alone for, well, a long time. So Stan came and picked me up and off we went. Ok, so I didn’t just skip out the door…I mean, I wink, winked, nudge, nudged a few of my nurse friends to help keep an eye on Declan…you know, just in case. Yes, they’re totally capable but it can be a little unnerving at times.
So off I went, in hot (not!) hospital outfit, hair in a ponytail and no make-up. I stopped wearing it a long time ago because it was pointless because I was just crying it off every day. Now, I’m not crying…at least not every day…but somewhere along the way I lost it so now I really can’t wear it. It’s rather freeing to not wear make-up, probably not a good thing at my age…but I digress again. Hardly date gear but Stan didn’t speed by when he saw me out front (he’s been sick so we’re trying to ensure Declan stays healthy) and we were on our way.
We went to Sweetwater and while the conversation wasn’t “date night” type chatter…we talked about radiation trips, 5th grade graduation, preparing for our trip, bills, the boys…it was, typical parent conversation stuff (ok, except the radiation part). It was nice and relaxing and just what we needed.
I imagine we’ll try it again at some point but for now it was nice. Thanks for talking us into it. We really needed that!
Declan has been doing well, he’s still getting sick from time to time and we’re trying to figure out the best remedy to help. His platelets were low today so he got a transfusion…it definitely perked him up.
…whatcha got for me today? I’m ready!